Directions to Chesterfield Infant Program.doc

 

 

Greater Richmond Area Community of Practice in Autism (CoPA)

 

What is a CoPA?

 

The purpose of a CoPA is to “share knowledge and information about evidence-based strategies in natural environments, focusing on infants, toddlers, and young children diagnosed or suspected of having Autism Spectrum Disorders (ASD) and their families, to enhance supports and services in the Commonwealth of Virginia.”  This means coming together and learning from one another so that we can better serve children with characteristics of ASD and their families.  

 

To learn more about what's happening in other CoPAs and enjoy a variety of resources on working with infants and toddler with ASD and their families,  please visit http://www.infantva.org/pr-ITC-CoPa.htm. 

 

Action Plan   This action plan describes goals and activities of the Region 1 CoPA developed during the initial meeting in March, 2009. 

 

Meeting/Event Schedule 

 

COME JOIN THE BOOK CLUB     

 

APRIL 26, 4-6 P.M. 

 

Ten Things Every Child With Autism Wishes You Knew  is an easy to read and light hearted book for anyone who has a child with autism in their life.   Ellen Notbohm uses humor and real life experience as a parent of a child with autism to provide a thoughtful list of characteristics from a child's perspective.  This book study will take place using multiple formats.  Our first meeting will be held on April 26th at the Tuckahoe Library from 4-6 p.m..  At this meeting we will set the format, date and times of future meetings.  We have spots for 10 participants.  A copy of the book is available for your use.   To register, contact Krystle Aidif, aidifkm@vcu.edu.

 

March 22, 2011

Follow up Discussion to Parent Implemented Intervention

 

Dawn Hendricks presented a very informative workshop yesterday on parent implemented intervention. Part of her presentation was an interview with Lena Winslow, the mother of a young child with autism.  Thank you Dawn and Lena !  Some practitioners and family members commented that they would like to learn more about effective strategies in working with families and practitioners.  If you (family members and practitioners) would like to share strategies you feel are effective when working with families, please add them to the discussion forum below.

 

(Scroll down to the discussion board area below highlighted in yellow.  Click on the link.  It will take you to the Google Groups Discussion area.  You will first need to sign in and apply for membership. After you establish membership, you will be able to post your ideas in the discussion area. If you have questions, please contact Sharon Jones, scjones@vcu.edu or Mary Tobin, metobin@vcu.edu.  Thanks for sharing your ideas.)

 

SAVE THE DATE

March 21, 9:00 - 1:00

Henrico Mental Health/Developmental Services

10299 Woodman Road, Conference Room C

Parent Implemented Intervention for Children with Autism Spectrum Disorders

Presented by Dawn Hendricks, VCU Autism Center for Excellence, www.vcuautismcenter.org

Learn more about Parent Implemented Intervention for Children with ASD, an evidence-based practice.  This is a follow up to the training provided last year and will provide an opportunity for you to learn more about this practice, ask questions and reflect on how to implement this practice in your own program.  

More information will come!

 

Meeting Notes

Parent Implemented Intervention Powerpoint

Child Study

 

February 2011 Meeting

February 23, 2011, 1:30 - 3:30

Henrico Mental Health/Developmental Services 

10299 Woodman Road, Conference Room C

Reading and Resources:  Building Parent Support.  Come and talk with Bradford Hulcher about resources provided by the Autism Society of Virginia, Central Virginia Chapter, and hear about recommended literature to support families and professionals.  Share the resources you've found too!  You will also hear about the new CoPA book club and enjoy networking, refreshments and door prizes.  

 

CoPA meeting flyer

Autism Society, Central Virginia Resource List

 

November 2010 Meeting

November 17, 2010

1:30 - 3:30 p.m.

Henrico Mental Health- Conference Room C

 

Sharon Jones, Sarah Peters and Linda Lindsey-Hoy presented information on becoming good consumers of information and evaluating information presented on the Internet.

 

Becoming Good Consumers of Information

Checklist for Evaluating Websites

 

June Meeting

Tuesday, June 29, 2010

1:30-3:00pm

Henrico Mental Health - Conference Room 123

10299 Woodman Rd, Glen Allen, VA 23060

 

Sara Peters and Margaret Nuckols-Currence of the Infant and Toddler Connection of Henrico will present on their implementation of Pivotal Response Training (PRT) as part of early intervention services. Please join us for this helpful presentation.

 

May Meeting

Wednesday, May 12, 2010

9:00-10:30am

Chesterfield Infant Program Office

101 Buford Rd, Suite 110, Richmond, VA 23235

 

Dr. Dawn Hendricks of VCU's Virginia Autism Resource Center presented on the evidence-based practice Parent-Implemented Intervention.  Dr. Hendricks gave practical, user friendly information to take directly into the homes of families with children with ASD and apply to our everyday work.

Parent Training Pres-5-10.b.ppt  

 

April Meeting

Wednesday, April 21, 2010

9:00-10:30am

Chesterfield Infant Program Office

101 Buford Rd, Suite 110, Richmond, VA 23235

 

Sharon Jones of T/TAC at VCU presented on Video Self-modeling. This is an evidence-based practice that has been used successfully with children as young as 2 years of age. 

Video Modeling Powerpoint

 

March Meeting

Tuesday, March 9, 2010

9:00-10:30am

Chesterfield Infant Program Office

101 Buford Rd, Suite 110, Richmond, VA 23235

Directions

 

Materials to be discussed:http://autismpdc.fpg.unc.edu/content/discrete-trial-training-0

                                        http://autismpdc.fpg.unc.edu/content/parent-implemented-interventions

                                        http://autismpdc.fpg.unc.edu/content/pivotal-response-training

 

November Meeting

Tuesday, November 17, 2009

3:00-4:30PM

Chesterfield Infant Program Office

101 Buford Rd, Suite 110, Richmond, VA 23235

Directions

 

This will be our Planning Meeting for the coming year.  Please bring topics of interest, ideas for additional members, etc.!  If you are unable to attend, please e-mail Jen Barnes-Maddox with ideas by November 16th for her to bring to the meeting.  

 

October Meeting

Wednesday, October 14, 2009

9:00-10:30AM

Chesterfield Infant Program Office

101 Buford Rd, Suite 110, Richmond, VA 23235

 

Allison Strickland and Cara Jean O'Neal of Henrico County ECSE Programs and Margaret Aunins and Kris Kuester of Chesterfield County ECSE Programs presented on

Part C Transition to Schools for children with ASD.  Good discussion was generated to include sharing more information at time of referral and upon eligibility.  Please see the minutes for this meeting listed in the minutes section below for a more complete recap of the discussion held.

 

 

September Meeting

Friday, September 25, 2009

9:00-10:30AM

Chesterfield Infant Program Office

101 Buford Rd, Suite 110, Richmond, VA 23235

Directions

Our guest speaker will be Dr. Donald Oswald, licensed psychologist at VA Treatment Center

 

Dr. Oswald gave a presentation entitled Early of Indicators Autism Spectrum Disorders and also discussed the merits of the M-CHAT screening tool.

The M-CHAT protocol is listed below but can also be found at www.firstsigns.org. 

M-CHATInterview.pdf; m-chat_scoring.PDFm-chat_scoring.PDF; m-chat.PDF

 

July Meetings to occur via Discussion Board (please see link towards bottom of page):

Meeting 1:  Meet and Greet - please take the time to become a member of our discussion board and create your profile so that the other CoPA members might know more about you. Please do so by Monday, July 20th if possible. Thanks to all that have created their membership on the discussion board!

Meeting 2:  Program Discussion to start July 21st - Donna Rimell, educator with the Chesterfield Infant Program, will post a description of what particular services and activities her program provides children with characteristics of ASD and their families; please share your thoughts on this program and ask questions.  Also, share what your program is doing, or hopes to be doing, for this population.

                    Chesterfield Autism Project Description: Please click here to review description.  Then go to Discussion Board link to make your comments.

 

June Meeting to occur via Discussion Board (please see link towards bottom of page):

Article for discussion: Early Identification of Autism: Early Characteristics, Onset of Symptoms, and Diagnostic Stability by Sara Jane Webb and Emily J.H. Jones.

                                Infants and Young Children, Vol 22, No 2, pp100-118.

 

Powerpoint Overview of above article:  Tidewater Early ID of Autism presentation.pptx

 

Share your thoughts on the article and/or the PowerPoint presentation via discussion board (see link below to Discussion Board). 

 

 

May Meeting 

Tuesday, May 26, 2009

9:00 - 10:30AM

Chesterfield Infant Program Office

101 Buford Rd, Suite 110, Richmond, VA 23235

Directions

 

Guest Speaker:  Dr. Pat Accardo, Developmental Pediatrician

                        MCV Health System 

Dr. Accardo presented information related to early diagnosis of autism spectrum disorder and shared his perspectives and answered questions about early identification.  Approximately 30 early intervention service providers attended representing regions close to Richmond and Farmville.   

 

 

 

Minutes

 

March 31, 2009 

 

May 26, 2009

 

September 25, 2009

 

October 14, 2009

 

 

 

Discussion Board  Please click here

Please use this discussion board to share ideas and resources.  After posting to the discussion board, use the "back arrow" to return to this page.  If you have not already done so, please set up your profile when entering the discussion board so we can all get to know you a little better. 

 

Other Area Events/Information

Chesterfield County Public Schools is offering a training on Promoting Communication Development in Young Children on Thursday, November 19, 2009 7:00-8:30PM. Please see link for flyer below.

Flyer for 2009 November Parent meeting.doc  

 

Resources

 

Have you Heard--Parent-Reported Autism Prevalence Rate??? 

10/5/09, George Jesien, Executive Director of the Association of University Centers on Disabilities (AUCD), sent the following message out  to AUCD members about an article published in the American Academy of Pediatrics' Journal of Pediatrics about new data on parent-reported prevalence of ASD.  National news agencies have also responded to this information and are highlighting the parent-reported autism prevalence rate of one in every 91 American children.  Maureen Conroy, VCU, cautioned in an e-mail to the CoPA that the "data is preliminary...one encouraging word is that these preliminary findings have caught the federal administrations's attention and they will be putting 85 more million dollars into ASD research."

 

 To AUCD network members,

An article entitled Prevalence of Parent-Reported Diagnosis of Autism Spectrum Disorder Among Children in the US, 2007 was published online today in the American Academy of Pediatrics’ journal Pediatrics(doi:10.1542/peds.2009-1522).

This study used data gathered as part of the 2007 National Survey of Children's Health (NSCH), a national survey directed and funded by the Health Resources and Services Administration (HRSA) and Centers for Disease Control and Prevention (CDC). More than 78,000 parents of children aged 3 to 17 years were asked whether their child currently had an Autism Spectrum Disorder diagnosis – including autistic disorder, Pervasive Developmental Disorder – Not Otherwise Specified (PDD-NOS), or Asperger's Syndrome – or whether their child had been given that diagnosis in the past, but was no longer diagnosed with ASD.

Some key points in the study (Taken from e-mail blast sent out by AMCHP):

· Analysis was based on a sample size of 78,037 children aged 3-17 years from the 2007 National Survey of Children’s Health

· A child was considered to have autism if a parent/guardian reported that a doctor or other health care provider had ever said that the child had ASD or that the child currently had the condition

· The odds for boys having ASD were 4 times higher than for girls; Non-Hispanic-black and non-Hispanic multiracial children had lower odds of having ASD than non-Hispanic white children; and children living in the Midwest and Northeast had higher odds of having ASD than children living in the West

· Nearly 40% of children who had been diagnosed with ASD in the past were reported by parents/caregivers to not currently have the condition

· Children with current ASD had better access to care than children never diagnosed with ASD, however children with ASD had poorer perceived quality of care as indicated by lower odds of having received family-centered care and needed care coordination, or receiving care in a medical home

· The study calls for continual monitoring of ASD and further understanding of the groups at highest risk for being diagnosed with ASD and the factors associated with ASD symptoms, and health care impact that could lead to more effective interventions

The study found a parent-reported autism prevalence rate of one in every 91 American children, including one in 58 boys

Below is a link to the article abstract. The full text can be purchased.

www.aucd.org/itac

Following are additional links with more information about the article.

http://pediatrics.aappublications.org/cgi/content/abstract/peds.2009-1522v1

http://www.washingtonpost.com/wp-dyn/content/article/2009/10/05/AR2009100500052.html

Parent handout from AAP:

http://www.medicalhomeinfo.org/health/Autism%20downloads/AutismOct5parenthandout.pdf

News highlights from AAP:

http://www.aap.org/advocacy/releases/oct0509studies.htm#autism

More information will be posted as it becomes available.

George Jesien, Ph.D.

Executive Director

Association of University Centers on Disabilities (AUCD)